Wednesday, May 4, 2011

What to do???


I am not getting ANYWHERE with early intervention! We went through the public school system and they would not accept him even with a diagnosis from a Pediatric Psychologist and I cannot get any of the Autism preschool centers to call me back. What on earth is a mom to do?? I am so worried that he is going to slip through the cracks during the summer. Does anyone have a home school program that they have supplemented with? I just don't want to miss this early time!

Friday, April 29, 2011

Alex+ Shorty= Happy times!


Xander lite up like a Christmas tree when when introduced him to Shorty! He started talking, making eye contact, listening, and acting confident. It was what I like to call an Autistic Miracle!!! He really does bring tears to my eyes just thinking about it.
Because he loves riding so much we are going to enter him into a lead line class at a local show in a couple of weeks. I only worry that the sights and sounds of the horse show will be too much for him once we get there. Too get him ready we have been watching youtube videos. Keeping my fingers crossed that this is something that he gets into!!!

Spring is here, kinda

It snowed here today!!! Where the heck is spring?? So, much has been happening around the Wiliams mini farm. I type this from my bed ridden, royal wedding watching, narcotic state.
Monday I had a much unexpected but much needed hysterectomy. I have always known that I have problems with my uterus and ovaries so I guess it was just my time to get them out. Needless to say I am still in a bit of pain but am doing better than I expected. The worst part is not being able to pick up the boys. I miss tossing them around and playing outside with them!
We are still waiting to hear the results of Jacks allergy testing. We do know that he is super allergic to many foods and environmental items but we still are not clear what is causing him to go into anaphylaxis so often. i get so nervous taking him anywhere new because I don't know what is going to set him off.
Alexis is on a new medication that is making him so tired. The big question is it working?? We think so, but we are not sure. Autism is such a funny thing and we are still so early in his diagnosis. What we do know is early intervention works and it is apparently hard to get your foot in the door even with a diagnosis and insurance. What do people even do??? Where do we begin?? My heart breaks for all of the families that are in a similar situation because it is very frustrating!

Look what the bunny left

Thursday, March 31, 2011

Longest week ever!

Poor sweet Jackamoe has had one heck of a week. We have been admitted to 2 hospitals countless breathing treatments, may injections, 3 epi pens drained and a not so fun ambulance ride. I wish that we could say what is triggering his asthma but the Dr's are stumped and they are suspecting, as they have for awhile, that there is some underlying condition with him :(. Next week we are praying to get more answers as we start pretty aggressive testing, some of it being new to the area and Jack might be one of the first kiddos to have certain tests.
It goes without saying that I am exhausted which has caused a flare up of my Lupus. No sleep and stress are too major trigger. Yucko!!
Scott has been such a blessing through this entire process. He offered many times to stay at the hospital with Jack, stayed home to take care of our mini suburban farm, and even packed me a perfect overnight bag. He really is my rock and I am still so amazed to be married to such a wonderful man.
On an exciting note we are adding a new member to our family in 10 days. I am fianlly getting my long awaited dream horse! To say that I am excited wouldbe an understatement. I will post more about him later!

Wednesday, March 9, 2011

too smart

Alex did great in his 2 weeks of trial in preschool, too great to be exact. He did so good there that he tested out of the program! Even though he qualified for assistance in social areas they could not justify letting him into the preschool on that alone. Somehow (??) he passed speech and language with flying colors so it that leaves us with our private insurance. Sooo... now we wait for an opening at the therapy center, here is where we could use your prayers. There is a wait list of at least 8 months!
In the meantime we will enjoy spring and all that it brings. I cannot help but to love this time of year.

Wednesday, February 23, 2011

Starting school and such



Sorry that it has been so long between updates. As always, I have been super busy trying to find that balance between work, family and life.
Alex started his 2 weeks of a trial basis of a preschool, with tomorrow being his last day. During the two weeks different therapists evaluate him to see if he qualifies for early intervention through the school district. Unfortunately ( or not! ) he is testing so high that I highly doubt that he will qualify. These past two weeks we have seen amazing leaps in his development! His speech has doubled!! It has been such a blessing. Hopefully, we will be able to find something else to get him enrolled in.
Poor Jacks allergies are so severe that we are we have to carry an epi pen with us. Please pray that we never have to use it. I cannot not even imagine! On a positive note, he is excelling at his preschool and I love to hear the stories that he tells us about his day.
As winter drags on , I long for warmer days and sunshine. I cannot wait to play with the boys outside and return to frequent trips to the zoo.